Benefits (UK)

Welfare and Benefits

If you are a member of NACC ( you may be able to apply for Welfare:

About the Welfare Fund

Anyone affected by Inflammatory Bowel Disease resident in the UK may apply for an individual grant from the NACC Welfare Fund if they are on a low income and have a specific need arising from their IBD. People applying do not have to be NACC members. Grants do not exceed £300 for any one item and a person may only receive one grant in a twelve month period. Applications can be for any item or need which arises as a consequence of someone having Ulcerative Colitis and Crohn's Disease.

Examples of recent grants

Replacement washing machine or dryer
Installation of a telephone for emergencies
New clothing because of sudden change in weight
Partial installation of a downstairs toilet
New bedding
Special education or retraining costs
A convalescent holiday.

Recurring household bills or debts cannot be considered, and people should seek help from the local Social Services or Department of Social Security. People who have an ileostomy are usually referred to the Welfare Fund of the Ileostomy and Internal Pouch Group.

How to apply

Forms are available from the
NACC Office. The form requires confirmation from the person's doctor that they have Ulcerative Colitis or Crohn's Disease and confirmation from a social worker, vicar, teacher or similar person who is aware of the general circumstances of the applicant.

The names of applicants and their circumstances are known only to the five members of the NACC Welfare Fund Committee.

Note: The information on this page is for people resident in the United Kingdom only.

Could you be claiming Disability Living Allowance (DLA)?

Many people with IBD don’t claim DLA, even though they are eligible. We contacted over 1,000 NACC members during the course of our research for the Disability Benefits Project. Many people gave us different reasons why there was no point in them making a claim for DLA – most of them were wrong. So, if you’ve never made a claim or you’ve been turned down in the past, please spare us two minutes of your time to find out if you could be eligible for DLA.

If you are the parent or carer of a child under 16 with IBD, find out if your child could be eligible for DLA.

As part our project on disability benefits for people with Ulcerative Colitis or Crohn's Disease, NACC has produced a number of different guides. You can download copies of these guides from the links below. (You will need Adobe Acrobat to do so. If you don’t already have Adobe Acrobat, you can download a free copy by clicking on the link below).

Alternatively, copies of these guides are available free from the NACC Office. (One copy per person). Send us an e-mail to request a copy, giving your UK postal address.

* Overview of Welfare Benefits
An easy to follow guide to some of the major state benefits that might be relevant to a person with IBD.

* Claiming Disability Living Allowance for adults
A 44 page, step-by-step guide to claiming DLA for adults (16 - 64 years) with IBD. The guide takes readers through the claim pack, box-by-box. Lots of useful hints and tips on: preparing for a medical visit; obtaining supporting evidence; keeping a DLA diary and much more.

* Claiming Disability Living Allowance for Children.
Similar to the adult’s guide, but for children under 16, who have to pass a slightly different test.

* DLA revisions and appeals for adults
Don’t despair if your claim is turned down or you don’t get the award you think that you should. Almost 50% of DLA appeals are successful. This guide tells you how to go about appealing and where to get advice and help.

* DLA revisions and appeals for children
Once again, similar to the adult’s guide, but this one is for children under 16.

* DLA renewals for adults and children
Information on completing renewal forms when your award is close to ending.

* Understanding Ulcerative Colitis and Crohn’s Disease
Many people with IBD discover that no-one involved in deciding on their claim seems to understand the condition. This is a brief guide to IBD which you might want to include with your claim pack, give to the examining doctor if you or your child have to have a medical visit or include with your appeal papers if your claim is unsuccessful.

There is a great deal of information on the Internet about other benefits, as well as DLA. Visit our benefits links page for details of some of the most useful sites.

The other part of the Disability Benefits Project is a DLA Benefit Support Line (0845 130 4455 on Tuesday evenings, 6.30 pm - 9.00 pm). This service started in January 2001 and is operated by a small number of NACC volunteers specially selected and trained. The aim of the service is to help people with IBD talk through any practical questions relating to DLA. It is supportive in tone, and general information is given about claims for DLA, but not individual advice. Specific advice on making a claim should be sought through a local Welfare Rights Agency or Citizens' Advice Bureau.


Great links for all USA Benefit information are :

September 2002 -- modified Aug 2003